The Best American Science and Nature Writing (2015)]
Seth Mnookin describes the story of Christina and Matt Might as they try to find a diagnosis for their son. Mnookin details the multiple doctors, lack of money, frustration, and disappearing hope as the parents struggled to find a name for the condition making their son wheelchair bound and body like “jelly” (191).
Mnookin uses the story of the Mights to describe the hardships many parents face when trying to discover diagnosis for new and accelerating rare diseases. Mnookin follows the couple’s story as they fight to encourage and empower other parents looking for answers on the diseases of their children.
What scene (key event or series of events) from the article did you find especially important for your understanding of the main issues being discussed? Why?